I’ve learned my lesson????

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A picture from the longest walk I’ve taken so far. I hope I rebound quickly so I can get back to this length.

I have been very angry. The kind of angry that just has to burn itself out because it has no release valve. I know that God is teaching me something I don’t fully understand, and I can’t promise it won’t be the last time I have to learn it. Over and over again I am reminded that I have no control over certain aspects of my life. I have no control over my uterus and ovaries and their near constant assault on my life.  I have no control over my doctors and their ability to relate to how much pain I am in, and very little control in what steps they will offer to relieve this pain. I have no control over how my loved ones react to my inability to accomplish my responsibilities. Worst I have no control over when the pain comes so plans are almost near impossible. I’ve been stewing on these things because I’ve not only been plagued by the normal endometriosis and adenomyosis pain but I got sick with pneumonia for a while. When I was in pain and also sick, I had time to soak in my anger and sadness. I didn’t have a lot of brain power to tell myself how lucky I am or figure out a way to make myself feel better about my predicament.

Sadly, my anger lasted a lot longer than the sickness. I get a little unreasonable when I am stuck in 700 square feet for more than a month. The only place I could go was the doctor’s office, and of course that was dreary. Also, coming out of one of these episodes feels like recovering after an ugly storm hits. Luckily I survived but now I have to rebuild. Working in a creative field takes a certain frame of mind, and the intermittent pain interrupts the process because I can’t think. So when the storm clears I have to get back my mojo so to speak. Not only that, but I have to go back and reread what I previously wrote and think about how to continue from there. The really messed up part is just when I am ramping up to start writing again, then I get another tornado of pain.

It is a mad rush to get up to speed and then try to make progress in all areas of my life. I have been trying to lose weight for years and that is another problem. I have been doing yoga and walking, but after this episode I had to start all over. I was up to three miles three times a week and three yoga sessions. After the episode I had to start all over and was having trouble doing the seven blocks to the library and the twenty scant minutes of yoga. It is like my body resets back to slack ass mode as a default.  My lungs get smaller, my legs get weaker, and I lose all the stretch I have gained in my yoga practice.

I am thinking about how often this happens to me and it still grates on me.  I know I am lucky. I have a great life other than this: a loving, fantastic and sexy husband, a deeply close lovable family, and friends that would give their ovaries if it meant I’d have no more pain. Bitching about this part of my life doesn’t feel right somehow. I feel guilty for being so upset, but a friend set me straight.

It’s okay to mourn not just for the loss of progress, but the lost time in my life. I miss out on time with all those people I love, and joy and discoveries while I am in so much pain. It isn’t just the progress I am making on my goals to be regretted; I am missing valuable experiences and moments. Time I won’t get back. I wish that I could just bounce back from these episodes as resilient as my fellow Oklahomans do after their storms. A high expectation but I still wish I could be stronger. What I wish is not really relevant because I still have to figure out a way to move on.

Unfortunately that means that I need to allow myself to just be upset so that I can move on. If I don’t just realize that I am going to have these feelings and not feel guilty about it then I can deal with the feelings and move on. This is my reality for now… Mourning it is okay. Feeling shitty about how my body has rebelled on me is natural and inevitable. For now I will have to just realize this is my life now. I will be going through this over and over again until I get help. I need to go with it and realize that rebelling against my feelings is just a waste of more time, and beating myself up about my feelings only gives me another reason to feel bad.

Part of what I am learning the more I go through this process in culmination with more and more yoga is how to be more kind to myself. Regretting that I am not stronger or what I have or haven’t done is not only a waste of time, it is mean. I am literally being mean to myself. It is like self-torture akin to pushing your own cuticles back but more insidious. I am as strong as I need to be to live and to get back up after being down and out for a month and that is a feat in itself. As a woman I was taught to be durable, as an American – resilient, and as an Okie – never to complain but sometimes those three things together make life harder than it is. Sometimes misery needs to be vented and recovery time taken. Rather than over and over pointing out what I can’t do or what qualities I like, perhaps it would be best to acknowledge how hard things truly are and that surviving is enough. My husband says, “Hey, you bled for a month and didn’t die-that’s extraordinary.”

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Seeing the quirkiness of Philly is always motivating to move more.

2 thoughts on “I’ve learned my lesson????

  1. Mandy

    Thank you Danielle. I have been feeling a similar way. Totally different situation but same feelings. I’m trying to rebuild too. You will rebuild Danielle. Chronic pain puts a stop to everything, I know. I just think about Prince and how he had chronic pain and one day he was in so much pain he just sought relief, and he died. Sorry didn’t intend to go dark. It has been on my mind. Chronic pain is a demon. But you have hope on the horizon now. You will rebuild. I wish someone could have helped Prince. God bless you.

    1. It is hard to rebuild, and to regain the stamina but we can do it. I think just acknowledging that its hard is the first step, and also not beating myself up about ground lost because it is out of my control. Ya know?

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